11 Comments

In a word, DAMN!

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You could try a dual dur microscopy screen perhaps ! If you can afford, that,s my next step . I actually think if you picked it up in the uk , there is a big chance bb bacteria are resistant to doxy as a similar class of drug is used in agriculture ! Really sorry to say this . I,ve had 3 goes on doxy now . I improve for 6 weeks after the initial painful shock , 3 months later symptoms back ! ! Also , if the health service in this country is so back ward , how do they not expect you to research things for yourself, you know yourself and how fit you were prior . They don't. This disease could cause massive issues in years to come . The island where I picked it up are now leaving there school field to grow for wildlife ! I don't think this is the sort of wildlife they want to encourage. There,s a whole new essay on the manicured parks of the Victorian era building up inside me here ! Huh !

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I've seen references to dual dur. However, most of the (not many) evaluations I can find seem to track back to companies with commercial skin in the game. Can to point me to an independent, peer-reviewed article in a mainstream science/medical journal?

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Hi Richard , I,m in similar position in UK. Been treated so supposedly okay ! There,s two dual dur spot,s in UK as far as I can see . Yes private , but the NHS has no interest in distraction,s ! While it,s so busy . I,m low in resources but will definitely get a dual der blood scan when I,m able . The science has been around for decades ! Seems very plausible. I will continue to research though. The Manchester one in the parasite clinic UK. Straight to the point lol !

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There is too much confusion and insufficient knowlegde. Many treatments applied world wide but not enough cooperation and accurate logging of treatment plans and outcomes….. its a wildwest so to speak…

However there are treatments that work .

Patient specific pathological patterns and dysregulated immuun respons make it hard to distinguish what is bacterial/viral or auto immune related.

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And the Wildest West seems to be here in the UK. Lyme areas in the US are much better served both by informed medics and the lead medical research institutions. Not everyone agrees, sure, and there are mixed outcomes, but the debate is public, there's progress and it's on record.

The big issue here is underreporting and misdiagnosis. A lot of people never get the right diagnosis or any form of treatment.

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Misdiagnosis is rife, lack of knowledge under the trained medical profession is a growing concern. I do think the education model levels off and has become to shallow .

Also the dependance on test results to diagnose , a clinical diagnosis purely reading one'symptoms is an almost extinct animal....

Lyme is still seen as purely Borrelia related but under the radar are the Bartonella species that are far more damaging...

Acute lyme seems to gain momentum in recognition, the chronic form still lingering on and causing innumerable suffering.

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You might find the section from minutes 32-40 interesting. Dr J Jemsek is a renowned US Lyme doctor.

https://youtu.be/aNQg8YNWyAA

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Thank you for the link. That's intriguing. I think my gallbladder, when removed, was in reasonably good shape - certainly much better than the one described in the video.

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There are so many studies showing how the Lyme bacteria survive multiple rounds of antibiotics, but for some reason, mainstream medical researchers choose to dismiss these findings and never cite them. Thankfully I realised quite quickly that the scientific community was failing Lyme disease patients and took charge of my own treatment. I'm now antibiotic free but was lucky as I found a solution that works for me using herbals. Recommend reading books by Rawls, Buhner and Horowitz.

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I'm working my way through it - there's a lot to learn. I've read Horowitz and am reading Phillips. Unfortunately, there are very few doctors here in the UK who can match them.

I'm taking control, but I need to work with a Dr who understands long-term Lyme (Lyme+) or whatever we choose to call it.

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